I knew everything was going to be okay when I reached reception at the haematology department, gave my details and received a ticket. On it was the number nine. Those of you who know me well will guess what this signals.
Have you ever observed day signs? I’ve been an intel gatherer for yonks and over the years many people have asked me where I get my information. Apart from being a knowledgeable geopolitical and historical big-head with an Aspie’s feel for hidden agendas, one answer is observing day-signs (omens), a magical way of information-gathering. Another is intuition/instinct, another is use of the pendulum and another is horary astrology (doing a chart for the moment when a matter arises or a question is asked). Of course, if I said this to many people I’d lose credibility or get accused of superstition, blasphemy, devil-worship or any other handily available accusation. But attentiveness to day-signs answers otherwise unanswerable questions. I was given a sign and it said ‘Nine’. I knew all would be well.
So there was I, later sitting in the Headland Unit at Treliske hospital. I’d had blood samples taken twice, I’d been ECG’d, weighed, measured, interviewed and briefed, I’d signed the assent form, taken four different pills plus ten of Dex (Dexamethasone), and then I had to wait an hour before they were to shoot me up with Dara (Daratumamab) and Velcade.
Well, at least these drugs are legal – that’s a change. It might sound strange, but I’ve had an issue coming up over this last year and, for me, it’s quite profound. It’s a tiredness with things not changing, even after a long time. One example is the ‘war on drugs’ which, to me as an aged hippy, has meant 55 long years of enforced criminality. Yes, me.
For half a century I’ve been living a very different life to the average Westerner but, despite all the talk nowadays about minority rights, things have not changed fundamentally, after all these years.
When I was 21 I stood on top of a mountain and made a vow to contribute significantly to world change, and while I knew it would take a long time, I so much wanted to see the world tip irreversibly into positive change before I was to die. But it looks like I’ll have to commute that joy and sense of relief to my next life. That’s quite a big let-go, but I made it last year. As I often say, history takes a long time. And we teach best what we ourselves are learning.
Anyway, back to the cancer unit: the journey had begun. It was a bit like the feeling I’d get on one of my humanitarian tours of duty, when the plane would take off from Heathrow on the way to the Middle East – I’d have gone through all the anticipations I could dredge up in the preceding days and weeks, and now it was business and I was dead calm and collected.
Some people think I’m brave, facing cancer treatment in the way I do, but there’s a simple answer to that: I’m not getting bombed or shot at, so cancer treatment is relatively easy when you see things from that viewpoint. Yes, I was getting nuked with EM radiation at Treliske (I’m electrosensitive) and bombarded with pharma-chemicals. And, amazingly, they didn’t even have any gluten-free biscuits or soya milk for my tea in the cancer unit, but this is peanuts.
Get upset with things like that and you’ll be useless getting shot at. This was a real problem in Syria, in the earlier days of the conflict in 2014. You couldn’t tell who was shooting at you or for what reason, because there were then about seven sides to the battle. They could shoot at you from any direction. At least in most wars it’s ‘the other side’ doing it, and you know roughly why and from which direction.
Anyway, that’s not the case here. My life is being saved, and for this I am grateful – without chemo treatment last year I would already be dead. Here I was, installed in an armchair, well out of it on drugs, and it felt okay. The main problem was not the chemo, it was my neurological system and brains squealing with EM radiation. Few people realise how discriminatory, insensitive and oppressive it is when they spray radiation from their mobile phone over an electrosensitive person like me, commonly regarded as an awkward person making an unnecessary fuss over nothing in particular. Yet radiation exposure is a direct cause of the particular cancer I have (myeloma). It’s a bit like being vegan 20-50 years ago – looked on as bloody awkward and deluded, and these people need to get a grip and get a proper job.
The nurses were keeping me in to observe how I reacted to the Dara. Fair enough. But there was just one problem: the doctors and nurses have little experience of people like me and they use ‘normal’ as their standard for judging everything. But I’m not normal. I have the benefit of having had a good diet, a growthful and meaningful life and, as a result, a more robust immune system and attitudes than the majority of people, and I can inwardly supercharge any therapies applied to me with consciousness work. Last year, my chemo treatment was cut from eight to six to five cycles of treatment – I did really well.
Inshallah, perhaps I’ll bring them a few surprises this time round. I had done a lot of inner preparation in the preceding days and, once the Chinese-Filipino male nurse, a nice chap, had shot me up with chemo drugs, I went straight into meditation, cross-legged in my chair, breathing myself down, modulating my energy-field to accommodate to the drugs and calm my heart which, in response to the Dex, an amphetamine, and the radiation, was pumping quite hard.
After doing this I went really deep and I was totally ‘gone’ for perhaps twenty minutes. I was consciously yielding to the drugs and my healing angels, who presumably needed me to hand over control so that they could manage the process. It was one of the deepest inner journeys I’ve had for a few weeks. When eventually I came to, I looked at the other cancer patients sat in their armchairs and hooked up to their drips, and the nurses going around doing their duties… experiencing all this with the perspective of an ET getting a look into this strange world through my eyes.
God bless these cancer patients, busy ingesting chemicals and most of them sitting fiddling with their phones, communicating with anxious daughters and neighbours to fix pickups. They’re all nice people, all facing cancer and reduced life-chances. They must wonder who this old guy dressed in his copper-coloured Arabic jalabiya was – a foreigner or a weirdo? But then, in Cornwall, it’s not like England, and this isn’t so strange, and when they hear I come from West Penwith, stacked full of oddbods and veterans of the revolution, they just nod, aha, okay.
God bless my nurse, who had been so worried about hurting me because I had so little subcutanous fat on my stomach to shove his needles into. No fat – not normal. But then, I’m not getting shot at, only shot up, so it was no worry – he was just being a bit over-conscientious. Later he came by and said, “Have you met the Dalai Lama?”. Yes, I had, though I’d mainly been involved with the Sixteenth Karmapa and his own amazing squad of lamas back in the 1970s. The nurse wanted to talk about the Tibetans, Uighurs, Hong Kong and Taiwan – he’d figured I understood these issues. He was deeply concerned about China – like so many emigrant Chinese, many of whom have lived outside the Middle Kingdom for generations, he still cared deeply about his country and people.
He said that, when I’d gone into meditation I had gone deeply quiet and the whole room had changed. I became aware that, although most of these people will have read and heard about meditation, few will actually have felt the darshan, the vibrational radiation, that can arise. There they were, stuck in their armchairs with nothing to do, while this guy at one side of the room was going somewhere that, on some level deep in their psyches, they knew they needed themselves to visit – faced as they too were the with threat of death.
The nurses were being overcautious with me though. I was supposed to leave by 4pm but someone had come in insisting I be kept there till 6.30, just in case. I told them this would not be necessary. But they could not go against authority. I showed them the places where I had been injected, which weren’t bruised or swelling, and reminded them that I had just hobbled all the way to the surprisingly well-stocked W H Smith’s at the main entrance and back, to get some gluten-free snacks which, astoundingly, they did not have available even in a cancer ward when they dished out refreshments. Eventually they ran out of excuses and I left at 6pm.
When I got to the main corridor, the guard, who had seen me go past on the way to the shop, now decided I couldn’t go that way to the main entrance. “But I’ve just walked 90% of the way there and you allowed me to do that”. “It’s the Covid regs – sorry it’s a pain in the ass”. He was a nice chap. “Well, I understand that, but it’s not a pain in the ass I’ll get but a wet bum, because I’ll need to sit down on the way and, as you can see, it’s raining…”. Nevertheless, old peg-leg had to walk round the hospital to get to the car park to find Lynne, who was going to take me home.
We got home, lit the woodstove, had a cuppa and detoxed from the day’s encounter with modern civilisation and its rules, timetables, regs and electrosmog. I was buzzing on Dex, and Lynne had to tolerate my rattling away for hours with my mind on overdrive until eventually we went to bed. She said she could smell the chemicals in my body. I lay there churning until I drifted off.
But I was alright. I seem to be tolerating the Dara (Daratumamab) well – that’s the new drug I’m on. The Velcade my body recognises, and I had had no problems with it last time. The Dex, meanwhile, though it charges its price in side-effects, does work well, and last winter I could feel that it was one of the most effective drugs I was taking. But it’s a bit like a cross between speed and cocaine in its psychoactive effects, and it heightens my Asperger’s symptoms a lot.
I’m on two other drugs too – an antiviral called Aciclovir and a kidney protector called Allopurinol – but I’m on a lot fewer drugs than last year, and that’s a relief. My body-psyche is more familiar and less shocked by the process than it was last year, and I don’t have the excruciating back pain I had then – so in this second round it is different.
So the anticipations I had had were just that: anticipations. Thus far, it is unfolding well. It’s difficult being on chemo, and writing this blog has been hard work, but it’s not as difficult as I thought it might be, and the Dara is easier on me than the Cyclophosphamide I was taking last year, which felt like being hit by an armoured bulldozer.
For the first time I’ve met my doctor and cancer nurses in person. Last year I had been treated at Torbay hospital in Devon, so the people at Treliske didn’t know me. During Covid lockdown I’ve had only phone and video consultations with one person, Liz, my doctor. So I felt quite on my own through much of 2020, as if held at a rather impersonal arm’s length during the Covid crisis. But now we were up close and personal.
I liked John, a fortysomething CNS (clinical nurse specialist). I think he figured me out quite well and had met people like me before. I get the feeling he’d done his fair share of raves and festivals before he had kids and got a ‘responsible’ job, so I was within his range of experience. This was true also for another nurse who, at a slack moment, came to say she too was a vegetarian – but I could tell she kept it quiet amongst her colleagues, rather like it was the 1980s – and to ask me a few questions about meditation.
And if you’re wondering why the number nine was significant to me as a day-sign, well, The Nine, some high beings for whom I wrote a book in the early 1990s, who jokingly used to call me Paladin Saladin, are at the root of my ‘spiritual genetics’. They’re like meta-grandparents who had placed the order for the weaving and construction of my soul. So, to me, they were signalling that they were with me and it would be alright. And they were, and it was. And so it goes.
With love, Palden.