Pain

This and the pics below were taken in Bethlehem, Palestine, in Dec 2012

I was talking to a friend about our different illnesses and she said, “You must be suffering more than I”. This made me think, because suffering cannot be quantified and I can’t really say ‘I am suffering more than you’. Or at least, if I do, I’m making judgements about that person and about me that don’t really hold up. With pain, it’s really difficult being objective – it all hangs around our capacity to accept, tolerate and handle it.

Pain is partially to do with what is happening and partially to do with how we’re perceiving and experiencing it. I knew this before cancer came my way, but I’ve found since then that it is more true than I thought. I don’t instantly reach for the painkillers – avoidance of pain charges its price too. I use them only when I’m worn down, needing a break, to stop myself going into a self-fulfilling pain loop.

It’s not easy. But we do make things more difficult than they need to be. We create more friction inside ourselves than we need to have. We take difficulty and pain as negative experiences, something bad, something wrong – often according to beliefs and predispositions that aren’t very good for us.

Yet pain isn’t wrong – there’s something strangely right about it, if we can but change our perspective and suspend judgement enough to see how this might be so. Too often we compare our pain with how we feel things ought to be, how they used to be or how they could be, and this has a way of increasing the pain. Because it turns us away from facing it.

It comes down to attitude. Attitude might or might not change our circumstances or their causes, but certainly it can change how we experience and handle it all.

I’ve learned a lot from people in conflict zones, especially Palestinians, who have developed such attitude over the generations, in both the personal and the social spheres. They’ve got tragically used to dealing with hardship and they’ve developed ways and means of surviving in situations where levels of hardship and suffering are high – such as sharing what they have and looking after each other. They aren’t angels and they make mistakes, but they’re better than we at protecting and helping each other, and making the best out of a bad set of circumstances.

Many people in the comfortable countries can get really upset over issues that are relatively small, such as a power blackout, a shortage, a traffic jam, or someone not doing what they said they would do. Tolerance levels are low, tight and sharp-edged. We have an unhelpful sense of entitlement to a problem-free life. So when the shit hits the fan we catastrophise it, mishandling it and often creating more problems than were needed.

In all of life’s situations there is a degree of choice, either to make a big deal over something or to square with it, accept it and do the best we can. The choice lies around the friction we put up. It’s an honesty process, and with pain we’re forced to face stuff we don’t like facing.

Spiritually, a key issue is this: we come to Earth to learn, get experience, go through it, learn from it and hone the soul. Because at the end of life, all you take with you is what you have become as a result of having lived a life. Pain is an intense kind of experience that has a way of grinding at us, drilling holes in us, attempting a takeover of our psyche and giving us a truth-and-reality experience.

It’s the price we pay for the pleasure of being in a body and the experiential access that it gives us to the wonders of the world. Without a body we cannot stuff chocolate, have orgasms, go on holiday or bliss out in a field of bluebells. Pleasure and pain, whether emotional or physical, are two ends of the same experiential spectrum, and you don’t get one without the other.

I had a remarkable experience six years ago when first stricken with cancer – a blood cancer called Multiple Myeloma, which erodes the bones and creates all sorts of trouble and pain. Since then I’ve had treatment, though there is no remission from Myeloma, and am now on a maintenance regime of medication, supplements and working on myself. I’m surprised to be alive, actually, though clearly there are reasons to be here.

The cancer came on quickly over a few months and I deteriorated rapidly. At times I was in extreme, 150% pain, immobilised, helpless, rendered into a wreck of a man, at death’s door. One day the pain was so intense that I couldn’t even raise my head from the pillow to drink – moving a millimetre made my bones grind and grate. But I had to drink anyway and tried moving.

The pain was so overwhelming that something in me popped out of my body and I saw myself from above – as a soul having an experience on Earth, lying there, all crippled and useless. There was something strangely comical about this. Something in me could see the poignant humour in it – here I was, suffering, more than I had ever experienced, and it was bizarre. I started chuckling. It really hurt to laugh. My then partner, looking on, thought I was losing my marbles.

The funny thing was that my experience of pain suddenly changed. It seemed to become more distant. I became more at peace with it. I was able to face it and accept it, from more of a distance – it was simply a fact, a situation. Something profound had shifted in the space of several minutes.

Over the next few weeks it decreased further and within a couple of months my pain levels were around 30%. Also, my boundaries had shifted. Previously, I could handle 20% pain without it getting to me too much, but afterwards I could handle 40-50% – my pain threshold had moved and it has stayed there since.

Over the last six years I’ve hovered around 10%, with a permanent, steady and stiff ache. I hardly notice it, having become used to it. Most of the time I accept it – except perhaps in the late afternoon when Sir Isaac Newton seems to switch up the Law of Gravity. But there are times when I do notice the pain and it gets to me, deep down – especially in winter. Usually these are times when my spirits are low and I’m feeling worn out with life.

So there’s something here about being spirit-propped. The pain, disability and precarity of a cancer patient have somehow thinned the membrane between me and spirit – a membrane that I used to try so hard to cross, while now it comes more naturally. There’s something to this about the perspective of experiencing life as a soul in a body, visiting Earth.

Pain hits us all, in all sorts of ways and degrees, and at various times. It can go deep, and we each have our crosses to bear.

For example, throughout my adult life I’ve experienced ‘political pain’ – the pain of being misunderstood and misjudged in public, and paying a high price for it (as a dissident and an Aspie-Autistic). It has impacted me immensely. It’s the pain of being wronged in the social and political sphere – sometimes by evolving facts and sometimes by the wrongdoings and micro-harms of others, or by the madnesses of crowds. Even so, this pain forced me to come to terms with the reality of it, to understand what was going on underneath and to forgive the people involved, and to understand and forgive myself too – and in late life, forgiveness has been a gift to the soul and a lightening of a burden.

The world’s pain levels are escalating in the 2020s, partially because so many souls are alive today having a human experience, and partially because life is getting tougher for everyone, everywhere. Outrageously tough situations such as we have seen recently in Gaza are just the tip of a very big iceberg.

And here’s the rub: no one is exempt. Hence, a generous and charitable attitude toward others in need is wise since the tables can turn. We might one day be glad to receive others’ help.

It’s our choice as to whether or not the future is going to bring hard times. We can make a big deal about things ‘going wrong’, or we can accept things and get on with it. In the end, many problems are not as big as we think they are. What might to one person be a disastrous crisis, to another person is just another boring night of bombing.

We create sufferings simply by complaining, being angry, feeling hurt, self-victimisation, or by doing things which are not the wisest. So the level of actual hardship and difficulty we face is a different matter to the way we handle it, and in the latter lies our choice.

Even so, for some on our planet, life is really hard and, in the short term, they don’t have many options – if, that is, they survive. This is not ‘their karma’: this is the world’s collective karma spilling over onto them.

One of the things I’ve noticed in my peacemaking work is that many of the peoples most beset by longterm war – Bosnia, Ireland, Afghanistan, Vietnam, Lebanon, Sudan, Palestine – can be the nicest people around, and it does not seem fair that such ‘karma’ should fall on them. The people most affected by climate change are mostly not the ones who created it, and the world’s poor are losers in a system steered by others. But even they are faced with occasions when choice becomes available.

If we follow a deeper path through life, over time it changes our emotional responses, perspective and priorities. We don’t need to consume as much, we don’t need to ricochet through life, we don’t need to deny ourselves tender moments with loved ones, and we don’t need to create as much waste and damage as we do.

Because something changes inside. It’s a slowly-distilling sense of basic trust, a simple knowing that, somehow, things are going to work out. Especially if we allow it. The issue isn’t about being perfect – it’s about learning from life’s lessons and making good outcomes out of difficult situations.

So this matter of hardship and suffering depends so much on where we’re looking from. While I have a blood cancer, I’m partially disabled and life is difficult, it doesn’t mean I’m sitting here suffering all the time. Though I must admit there are times when I do.

Sometimes, in down times my spirits seem lost in a fog of fatigue, but even then it’s a matter of being patient and letting it be. I can struggle against it, feeling as if I ought to be doing this or I wish I could do that, when in fact it’s okay to take it as it comes, to flop down in a dull state and let it be. I tend then to revive more easily next day. It’s just that I’ve have been given yet another cameo experience of being on planet Earth.

With love, Palden

Impermanence

I was physically unable to post my previous blog, so it sits below this one, for your interest. But first, here’s the latest…

Tregeseal stone circle, Cornwall
Tregeseal stone circle – a prehistoric time machine

My next Aha Class in Penzance, if I am able to do it, is all about time. On Earth we are locked into time of two kinds – ticktock time and ‘cosmo-time’ – and they interweave in ever-fascinating ways. Whether or not I can do the class is, I hope, mainly a matter of dates. A matter of time. Stay tuned.

I’ve been learning a new level of being with time, and facing the deep and simple Buddhist truth of impermanence. Everything that begins also ends. With no exceptions. The only constant is change. At times recently, sitting or lying in overwhelming pain, I’ve been tested on this. Because pain often feels like it will go on forever. Cosmo-time, subjective time, stretches out as if striving for permanence. Though it never quite gets there.

All things must pass. Not necessarily in ways we might prefer, but they do pass. The experience of life on Earth is about this. It takes time for things to happen, and for us to learn how to make them happen, and for us to digest the consequences. It’s a pilgrimage, and it’s the travelling thereof that matters most. Besides, in the end, we die anyway. Our empires crumble and, however much we seek to immortalise ourselves, we are forgotten. We disappear into the dustbin of time.

I knew this long ago. But life has a way of bring back old lessons and taking them a level deeper. I’ve been an astrologer for decades and I’m still learning about time. And at those times when coughing or crying sets off muscle spasms lasting minutes, I’m being tested on it – bigtime!

I am still not well – it’s mainly muscle spasms in my torso, that are painful and debilitating. It’s a by-product of cancer, a kind of neurological overreaction to weaknesses in my bones, though I seem to be doing quite well with the cancer itself and the new medication I’m on – according to my guardian haematologist angel at the hospital. But the spasms are a killer. It has been two weeks of at times extreme pain, with extra added opioid-induced haze and sluggishness.

I seem also to have fallen into an NHS black hole, trying and failing to get a muscle-relaxing drug I was given five years ago (they’ve lost the records, no one is taking charge, I’m being bounced back and forth too much and, after ten days, I’ve got nowhere). Since getting tense induces more muscle-spasms, I’ve had to drop it. All things shall pass.

I’m spending too much time on my own, and that’s difficult. Endless digital messaging, questions and advice are no substitute for human contact. I do understand how everyone is busy, I dislike being a burden and it’s not nice asking so many favours, so this presents a dilemma, and I’m chipping away at resolving it.

So I’ve been missing company. I appreciate offers to help, heal or do shopping, though it’s actually company that tops the needs list. I don’t need company all the time, but some of it. So if you have time, you’re welcome to hang out with Paldywan (though you might have to make the tea).

After nearly three years since she left, I still miss my former partner and her family – I’ve found that hard, and hopefully her life has improved without me. In our day, our friends, family and people we’ve bonded with over time are so widely spread. Salam, peace, to all of you with whom I have bonded, whether closely through time or in just a deep twenty-minute connection. Time and space separate us, though somewhere deep down we are together still.

Writing is physically difficult and one-fingered for me at present – I have to hold myself up with the other arm. It raises a question about how I shall continue with my blogs and podcasts as my abilities decline. One day I guess I’ll just go silent and, from then on, I might need someone to pass messages or upload soundfiles. But we’ll face that when we get there – my illness of the last fortnight has flagged this up.

I had a past-life memory that came up, possibly from several lives, of being a scribe, of writing things down for others. Pain squeezes interesting jewels of insight from our psyche when we yield to it.

This illness has also flagged up a need to get a support system better organised, so that it works well both for me and for those who choose to do supportive things. I’m really grateful to those of you who have helped. And life is a busy thing, squeezed inside a vice of time. I’ve been like that too – I do understand.

The recording of my last Aha class about Activism will be ready soon. Sorry, the production team is on a go-slow, haha. The next class is about time, conjunctures of time and the way ticktock and cosmo-time intersect and interact through such things as fullmoons, solstices and planetary line-ups – power points in time. I’ve written a book about it too (see below). The date will either be confirmed or changed before long.

The Sunday meditations continue, whether or not I announce them. I’ll return to writing reminders sometime but, until then, I shall still be there on Sundays, and you’re welcome to join when you can, wherever you are. Come and join us in the zone – it’s like plugging into a wormhole leading to the shining realm of the timeless.

Now it’s time to make breakfast. I was awake at 4.30 this morning, got up, made a drink (quite an operation), and propped myself up in bed to watch the dawn. After I’ve uploaded this I’ll go back to bed. Bed gets boring, but it’s what life is like at present – an exercise in horizontality.

With love from me. Palden

The Aha Class: www.palden.co.uk/aha.html
Sunday Meditations: www.palden.co.uk/meditations.html
Power Points in Time: https://penwithpress.co.uk/product/power-points-in-time/
My website and archive: www.palden.co.uk

HAMMERED

21st September 2024

I’m still alive. Made it through another long night. I’m still in pain, from muscle-spasms clamping my torso – it fluctuates and moves around my torso throughout the day – but while it was 90% pain a week ago it’s now 60-70%. Better, but still rather crippling at times. Though being muscle spasms driven by a deep underlying tension arising from the recent weakness of my bones, it’s a really good mindfulness exercise too. I have to monitor my mindset to provide no worry-hooks for the spasms to latch onto. Sometimes it works, sometimes it doesn’t.

They gave me opioids to deal with it. I’m not happy on opioids – and I’m speaking as an aged hippy with good first-hand experience of drugs. They weigh down my psyche, drain willpower and fog my brainz – though they do deal with the pain. I wanted a muscle-relaxant that I was given five years ago but for some reason I’m getting no action on that. I’m being well treated by the doctors, but too many doctors and nurses are involved, all of them working from my NHS computer records while only one or two have actually met me.

This went wrong last week. A doctor who knows me would prescribe dosages at around 70% of normal strength. A meditating, vegetarian psychic non-muggle who’s wired up rather differently from ‘normal’ people, I don’t need sledgehammering with medications – my system and my ‘inner doctors’ process them pretty well, thank you.

So there I was, on my first day on opioids – it brought relief from the searing pain – and the recommended dose knocked me out. My temperature suddenly rose, I broke out in a sweat and suddenly felt faint. Next thing, I woke up on the floor. But I fell well, semiconsciously, because I was lying quite comfortably (as it goes) and I had no bruises or headache when I awoke. I lay there, weak and drugged. Eventually I managed to get vertical – quite an operation taking at least an hour – and later a friend dropped by and saved me.

I’ve been given notice. I must sort out my support system – it’s not really working. It’s too complex – I land up with lots of visitors quizzing me and looking worried, while only some are useful or know what to do. I need one person to ring when I have a crisis, on whom I can rely to fix something amongst the wider circle of helpers. At one point, one visitor simply held my hand, and that was so good – such a small act of humanity can be really touching at wobbly, pained moments like that. A few days later she came and cleaned my house – and that, to a Virgo, is a great relief. Shukran jazilan, Selina.

The doctors are being good with me – once I was escalated up the list, that is. And people are being good too, though they have no time and such busy lives or other issues to deal with, especially on the recent fullmoon. But something is not quite right – I’m on my own too much. Just as well I’m a good survivor, even if a seized-up cripple of a crock. Clearly, Allah doesn’t want to take me away quite yet, even though he had a good chance to do so – so that’s a reality-check worth having. But I’ve been given notice that something needs to change if I’m going to get through the next chapter in reasonable fettle.

Today I have my weekly mega-blast of cancer drugs, Lenalidomide, Ixazomib, Dexamethasone, Allopurinol, Apixaban and Aciclovir. Sounds exotic. I’m a bit concerned about taking a steroid (Dex) and opioids together, but I’ll play it by ear and tough it out. The accelerating deterioration I was going through has stopped – I can feel it – and the cancer drugs are gaining the upper hand. But the drugs have shocked my system – and that’s part of the cause of the muscle spasms.

We have dramatic thunderstorms here this morning. It’s quite energising to my poppy-suppressed old body and its shattered nervous system. Recently a young Gazan welcomed the thunderstorms they were having there because they drove the drones away and there was some peace. We must remember how lucky we are.

And whenever anyone asks me ‘How are you?‘ – like, fifteen times every day – my best answer is, “Well, I’m like this, really‘.

May spirit bless you and keep you, and cause its light to pervade you, and guide your way home.

For all of us, a time comes when it’s our turn to go home.

Love from me. Palden.

Tregeseal stone circle