“Suffer the little children to come unto me“, said That Man, the prophet Issa (Jesus). But the children didn’t suffer. They were suffered, or allowed, to visit Jesus, and it might have been a high-point in their lives, or even his.
For cancer ‘sufferers’ of today, it’s all a matter of how we define suffering and how we deal with it. I’ve harped on about this in my audiobook Blessings that Bones Bring, and in my blogs.
Permitting or even welcoming cancer isn’t easy. It involves a lot of inner struggle. You don’t have much option about what’s happening, yet there’s a big, yawning option about how to deal with it in your mind, heart and soul. For me, squaring with cancer has been a boundary-stretching exercise. I’ve also had to learn how to stretch myself manageably, neither overstretching nor understretching.
Though I’m rather frail and unable to handle life in the way I once did, there have been compensatory advantages. One was mentioned in my last blog – a tenuous strength that can come from weakness and from dealing with rapid successions of truths, crises and scrapes. Fragility has a way of focusing heart and mind. It’s a matter of keeping my head above water as the water gets deeper and more swirly. I’ve kinda succeeded thus far, since I’m still here, though at times I’ve felt out of my depth and overwhelmed.
Now, five years in, I’m at a turning point and rather surprised to be alive. A new line of cancer treatment starts on Friday 30th August. I decided to bring it forward and start, regardless of my fears and reservations. It’s time to get started and get it over with, instead of prevaricating, biting nails and suffering over it.
If I suffer and grind myself up too much, I just wear myself down, and it doesn’t help. I just can’t burn up energy resisting things. I do go through resistances – especially when it all feels too much and something in me wants to dig in my heels – but I seem to come out the other side. It’s all a process.
Since January 2024 I’ve taken no cancer medication. However, I’ve been on homoeopathic treatment and also Resveratrol, an extract of Japanese Knotweed (of all things). It’s an antioxidant that is specifically good for my kind of cancer, Multiple Myeloma, and it’s taken with Quercetin. Before that, the previous pharmaceutical treatment, an immunotherapy called Daratumamab (Dara), succeeded for three years (longer than for most patients, apparently) but its efficacy started declining.
The haematologist overseeing my case reckoned I’d done well with Dara and, six months ago, we chose to pause treatment to wait and see. She knew my results had been consistently good and that I have strange ways of handling things – even if she and her colleagues are singularly uninterested in what those strange ways are. So we waited until my blood tests started showing deterioration. This took a bit longer than expected.
But recently, my readings started rising. A key reading, paraproteins, stood at three a year ago and now it’s at 25. I was already feeling a downward droop in my condition, and these readings confirmed that feeling. It’s exactly five years since cancer suddenly changed my life, and I recognise the subtle buildup-symptoms that I experienced then.
The main, though rather indistinct buildup-symptom was low life-energy. I’m feeling that again now. Six months ago I would have three up-energy days and one down-energy day, and now it’s more like three down days to one up. I feel my bones getting weaker – they start hollowing out. Following a recent PET scan, the haematologist told me that this is happening in both ribs, in vertebrum T5 in my lower back, and in my pelvis and my thighbones.
Many people tell me how well I look, but my smile and shining eyes don’t necessarily mean I’m in the best of conditions. They simply show that soul is propping me up with light, focusing my energy, and adversity is brightening me. That luminosity says little about the downward direction my body is heading in – even if my soul is heading the other way.
Down-energy days are wearing. On these days I wish I didn’t live alone. I get low life-energy and lack of motivation, dull brains and droopy heart – and the best place to be is in bed or a comfortable chair, where I’ll read or drift off. I can stay slowly active during such a day if I have a mid-afternoon rest, though I have to give myself permission to do it and also I need to fend off external pressures to perform, socialise and answer messages. I have to stay abreast of chores, cooking and daily-life demands too. Taking rests means I fall behind on those demands. Sometimes I catch up on up-energy days and sometimes I don’t.
Up-energy days can be challenging because on those days there’s so much to do to catch up. I need to wash clothes, clean the house, do shopping, think things through, fire off requests for help, answer copious messages and, with luck, take a walk. The problem with that is that these days are when I’m in my best state for writing blogs and making podcasts, and it all gets a bit much.
This increase of down-energy days, plus a feeling of weakness in my bones, forced me to address my fears. I had anticipations about the next combination of cancer drugs I shall be taking, Lenalidomide (Len), Ixazomib and Dexamethasone (Dex). Len is a variant of Thalidomide. [If interested, details here.] My mother took Thalidomide for morning sickness when she was pregnant with me in 1950, and I was lucky to avoid serious deformity – thus I have an instinctive wariness over this drug. I have wondered whether Thalidomide activated the Asperger’s Syndrome I’ve lived with throughout life.
That’s okay, and that’s how life has been for me, but I noticed that, during initial cancer treatment 4-5 years ago, my Aspergers tendencies seemed to be amplified, particularly by Dex. This leads to difficulties managing my life and communicating my needs, without someone to speak for me or to talk to. No one covers my back and I have no reliable, close-by fallbacks. My son, who is good toward me, lives four hours away and is a busy man – and this kind of sociological issue affects many seniors.
Our communities and families have broken down. People like me are supposed to be given independence as a remedy for this. Well, yes, in a way that is good, but in another way it means loneliness and isolation.
There’s another side to Aspergers though – ‘Aspie genius’. It’s a heightened capacity to think outside the box, apply intense intelligence, to be amazingly creative and innovative and to find solutions in quirky ways. I’ve been very creative and a new spirit has settled upon me since getting cancer. Which goes to show that, to every apparent problem, there’s another side.
I have plenty of lovely friends who do small, occasional helpful things, and that’s great, but there’s no proper backup and it’s all rather haphazard and unreliable. That’s where my fear lay around the next line of cancer treatment. I felt unprotected.
After grinding through my stuff about it for some time, I came to a conclusion. It was simple. Palden, get over it, give thanks, take the plunge and all will be well, somehow. And if it isn’t, make that okay too.
It’s a choice of consciousness: to follow the fear path or the growth path.
The alternative to taking the new cancer drugs I’ve been prescribed is to continue declining slowly, with increasing down-energy days, foggying brains and a likelihood that my bones start collapsing or breaking. There’s no alternative really – and I risk attracting multiple volleys of suggested miracle cures by saying so – yet I was hesitant to make the choice. It wasn’t exactly the treatment that bugged me. It was my background worry about vulnerability and facing the future alone. So, I decided to get over it. The issue isn’t resolved, but my fear around it has changed.
The haematologist said two more things. A new treatment is coming online in a year or so, which she thinks will be good for me. That sounded interesting, and a welcome glimmer of light for the future. The other was a big surprise. She reckoned that, unless something else happened, it looks as if I have five to seven years left. Gosh, it doesn’t feel like that – I’d have estimated three. But then, I estimated three years about four years ago, and here I still am!
‘Suffering’ cancer has involved floating in a kind of plan-less, timeless void, taking each day as it comes – and chemo-brain has put me in that space too. But now, having survived five years, and with a growing sense of having at least a few years left, I feel an unexpected need to make some plans.
I have to adopt a new balance-point. I stand between being locked in the here and now, never knowing how much time I have left, and the need to make plans and arrangements, because that’s the way the world works. After all, I really don’t know what I’ll be like in a month’s time, or even next Tuesday. But then, there’s more to do before I go, so some planning is necessary.
I’m going to do more public talks – these are what’s within my scope right now. I’m in Glastonbury on Wednesday 4th September, doing a talk called Sludging through the Void with Muddy Boots (and why ETs have spindly legs). [Info and tickets here.] It’s all about the ins and outs of being a conscious soul living in a dense-physical world like ours. And a few other mildly interesting things, hehe – I range wide. Let me take you on a journey.
In addition I’m starting a monthly series of talks in Penzance called the Aha Class – a kind of master-class from an old veteran, for those who need something more than the usual stuff. The first, on Wednesday September 11th, is about Changing the World, Life-purpose and Activism. [Info and tickets here.] It concerns the personal and wider issues around making a difference in the world, the things we need to get straight about in ourselves, and the soul-honing, magical and deep-political dimensions behind it. Later Aha Classes will go into the workings of time, extraterrestrial life, the ancient sites of West Penwith, and in 2025, world healing, the movements of history, talking-stick processes, the Shining Land of Belerion, and close encounters.
Nowadays I often wonder what state I’ll be in on the night, but it always works out somehow. That’s what comes of years of training myself to stand in front of people, inspirationally holding forth, whatever state I’m personally in. It lights me up and it heals me. I realised this in the 1990s when I was booked to do a speech and I was really quite ill and ‘out of it’. Guess what, I did one of the most brilliant talks I’ve done in my life and, not only that, but I started quickly getting better in the days that followed.
Doing what I’m here to do helps Spirit keep me alive, regardless of medical conditions and diagnoses. If there’s good reason to be alive, I’ll stay alive, and if those reasons dwindle or I’ve reached the end, then it’s time to go.
So I’m starting a new cancer treatment and a new series of talks at roughly the same time. Well, life is for the living, and that’s the way things panned out, and there is presumably something right about it – we shall see. Thus far, some of the altered states that cancer drugs have taken me into have been quite interesting and, since I’m a stream-of-consciousness kind of speaker, you might get some good streaming!
Also, having stood on stages and clutched microphones for more times than I can remember, I’ve trained myself to be alright on the night. But it’s still an energy-management thing. I might be on stage for 60-90 minutes, but the buildup and unwinding process takes about four days in energy-management terms.
Sludging through the Void. Our lives on Earth feel quite long but actually they’re rather short interludes on a much longer and rather winding path through many lives. The Tibetans have an interesting understanding of this. Our waking lives constitute one of six bardos or states of experience. Others are the dream state (when we’re asleep), meditative and altered states, the transitional period of death, pregnancy and the moment of birth, and the after-death state. The nature of the after-death state varies greatly in shape and form, depending on where each person is at. Each of these states is, from the viewpoint of the experience of the soul, equal in magnitude.
Yes, the process of getting born, or the process of dying, is as big in impact as the whole of the process of living life in the world (waking life). The duration of a birth process is measured in hours while a lifetime is measured in years and decades, but the scale and intensity of each of these experiences is pretty much the same. Also our inner dream states and our altered states are as great in magnitude as our waking lives. It’s the same soul experiencing them all.
If you’re on a magical ceremony or meditative retreat, or you’re tripped out on psychedelics, or you’re ill to the extent that you’re right out of it, such an experience might objectively last hours or days but in the psyche it can last an aeon, stretching to infinite proportions. The more you have such experiences, the longer your life will be in evolutionary terms, as measured not in years but in volume and meaning of experience. In this sense, although my 74th birthday soon approaches, I feel like 120 years old.
So even though our waking lives are locked in time, and for many of us our lives seem to last a long time, the magnitude of experience gained in waking life is only equal to that which happens in the roughly nine months that it takes to get born, from conception to birth. Anyone who has been present at a child’s birth will know how time and experience take on a different dimension during the birth process. The same is true at death.
We cherish and hang on to our lives so much. Yet, for every one of us, the story of our lives inevitably comes to an end and we return to another realm – a place where we’ve been before many times. Whether it feels like home, and how well we do with it, depends a lot on the extent to which we’re attached to the narrative and the mindset of the lives we’ve just left. If, during life, we have tended toward being open or being shut off, it makes a big difference.
Whatever prevails in our psyche during life tends to replicate itself after death – though there are possibilities during the dying process to shift tracks, forgive the past and move to a different level. It all hangs around the way we habituate ourselves to respond to momentous situations in daily waking life: do we follow the growth choice or the fear choice? Because that sets the patterns.
When you die, you lose control. Your available choices are minimal. It really does hang around the question of what you’ve done with your life and what you have become since you were born. What have you habituated yourself to do, regarding the growth or the fear choice? Did you predominantly open up or close down? That’s what you’ll face when you’re dying. Dying is a test of where you’re really at – not where you would like to be at. But also, what we fear about death generally doesn’t actually happen.
Dying is not something to attend to later. We’re all setting the tracks and patterns for the manner of our passing right now, today, in our waking lives, in dreams and altered states, and our death from this life is a rebirth into another world. The process is not fixed and immovable, and there are redemption opportunities at every stage, and that’s the way it works.
In our culture we do little to attend to these matters, and we tend to believe unthinkingly that everything just goes dark when you die, and that’s it, and it all just shuts down. If this is our belief, then dying can be a bit like being pushed over a scary precipice with no knowing what happens next. But if we have developed a strong sense of knowing and trust that there is something that follows after dying, then it’s more like a relieving float, following the current through a portal of light. Turn off your mind, relax and float downstream – it is not dying, it is not dying… Good old John Lennon – he came up with some good ones.
Love from me, Palden.
Site: http://www.palden.co.uk
Blog: https://penwithbeyond.blog
Podcasts: http://www.palden.co.uk/podcasts.html
Notes from the Far Beyond 